Friday, December 21, 2012

Shawn's Anomaly Mission Towards Integrity

In the recent days we have all been witness to the tragic events that have taken place in Connecticut.  As parents and friends, we at Shawn's Anomaly have become way too familiar of how much tragedy can increase venerability of the families that are affected.  We want to send our condolences to those families that have suffered loss. 

Because some people moved give to reputable charities because it is their human nature, there are also predators and con artist that are so willing to take advantage of those who are willing to lend a helping hand. Here is a recent example of a con artist trying to profit from the Connecticut School Shooting as NBC's Jeff Rosen reports:

Visit NBCNews.com for breaking news, world news, and news about the economy

 http://todaynews.today.com/_news/2012/12/21/16051227-rossen-reports-scammers-try-to-exploit-connecticut-shooting?lite

Sadly this has even hit way to close to home with certain families that we have tried to support through Shawn's Anomaly in 2012.  When the family of Liam Lyon was mourning the loss of their "Little Lion", they were generous enough to allow all of those that were touched by Liam's journey to take part in the memorial service.  Shawn's Anomaly helped broadcast the memorial service online to thousands of homes online live, and we left a recording service up for others to watch that could not watch during the time of the service. Sadly, another predator used that service to take screen shots and solicit donations to the point that we were forced to take down the recording because it was upsetting the family.  The family also had other con artist profiting from the sale of shirts that the family gave to someone who said they would help raise money for and they they never received of the contributions.

During this time of giving and generosity, we felt that it was imperative to reiterate our commitment to integrity and transparency of Shawn's Anomaly.  100% of all donations that are given through our partners Ironman Foundation & Reason2Race are given directly to the Shawn's Anomaly Research Fund that is set up with Texas Children's Hospital to aid with the advancement of medical research and the standardization of an international birth defect registry.  Any Indiegogo pages that are set up by myself, Matthew Murphy, or other verified representatives of Shawn's Anomaly, will from this point will always be fixed funding campaigns that will provide reimbursement back to the original donor if the goals are not met.  An example of this type of campaign is the 2013 Pratt Pack Family Campaign.

We also want to reiterate that we do not push any type of religious agenda.  Congenital anomalies don't see a difference of religion, denomination, creed, color, or origin, they affect everyone without prejudice.  Even though most of the leaders are Christian, Shawn's Anomaly does not have any any religious or political affiliations in efforts to avoid not being able to help all deserving families. 

We understand the skepticism that you may have regarding non-profit organizations, and Shawn's Anomaly will do everything we can to provide you with adequate evidence that our mission is not to profit from your giving.  You have our promise that our mission is help those families are affected by the 1 in 30 children born with congenital anomalies and change how the world views the leading cause of infant deaths.

Happy holidays from all of us at Shawn's Anomaly to all of you!

No comments:

Post a Comment